Two boys, same metabolic disorder, two very different futures.

One started kindergarten this week, the other requires 24 hour supervision and a GPS tracker in case of elopement. #CH #Autism

Michigan Department of Health and Human Services, care to explain why your response has basically been #sorrynotsorry since day one? Why – when you know that approximately 10% of confirmed cases of #CH won’t be caught on screening, are you okay with this?

My son, Micah’s future was never any less valuable than my son Eli’s future. Saying your program isn’t designed to detect mild #CH isn’t acceptable.

#NotGivingUpOnThe10Percent
#NewbornScreeningAwareness 
#MichiganNewbornsDeserveBetter

– Mama Genius

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