By this time last year, we had the hypothyroid diagnosis but we didn’t know where to turn to. So we search onlined and found a wonderful website from the MAGIC Foundation. Then, through that website we connected with other parents in a Facebook group called, “Parents of Children with Congenital Hypothyroidism.” This has been a blessing! There were other parents who we could actually relate to!! The only difference was that most of the parents had babies or children who had been diagnosed a lot earlier so they weren’t dealing with any developmental delays like we were. We are so glad we joined because when we had Eli this summer he was diagnosed with CH immediately after birth. Yet another reason we believe Micah was hypothyroid from birth and the “unspecified” should be dropped from his diagnosis! A super FAIL on the pediatrician’s part!
Here are the links to the website and Facebook group if you are interested:
Parents of Children with Congenital Hypothyroidism